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General Links
ADD/ADHD
Allergies and Asthma
Asperger Syndrome
Autism
Blind/Visually Impaired
Cancer
Cerebral Palsy
Chromosomal
Cognitive Impairment
Deaf/Hard-of-Hearing
Deaf-Blind
Developmental Delay
Diabetes
Down Syndrome
Emotional Impairment
Epilepsy
Fetal Alcohol Syndrome
Fragile X Syndrome
Heart
Intellectual Impairment
Kidney
Mental Health
Metabolic
Mitochondrial
Muscular Dystrophy
Neurological
Prader-Willi
Rett Syndrome
Specific Learning Disabilities
Spina Bifida and Hydrocephalus
Tourette's Syndrome
Traumatic Brain Injury
 
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Disability Links
 
Below are links for websites related to specific disabilities and conditions. Also included are Resouce Sheets, collections of suggestions for books, guides, websites, and other media on a specific topic ( in PDF format, which requires Adobe Acrobat Reader). All links will open in another window. You may need to disable your pop-up blocker, or press the "CTRL" button while clicking on the link. Know of a good link we did not include, or find a broken or inactive link? Send us an e-mail: quincypac.org@gmail.com.

These links are provided for educational purposes only. Inclusion of them here should not be considered an endorsement by QPAC, and QPAC is not responsible for any information contained on these websites.

 
General Links
 
American Academy of Pediatrics
Health Finder
Medline Plus
National Dissemination Center for Children with Disabilities
National Institutes of Health
The Centers for Disease Control and Prevention
   
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ADD/ADHD
 
ADDitude
ADD Resources
Attention Deficit Disorder Association
Children and Adults with Attention Deficit Disorder
National Resource Center on ADHD
One ADD Place 
 
ADD/ADHD Resource Sheet ADD/ADHD Resource Sheet
Executive Function Resource Sheet Executive Function Resource Sheet
 
 
 Allergies and Asthma
 
Allergy & Asthma Network Mothers of Asthmatics
American Academy of Allergy, Asthma, and Immunology
American Lung Association
American Lung Association of Massachusetts

Asthma and Allergy Foundation of America - New England Chapter
Food Allergy and Anaphylaxis Network
National Heart, Lung and Blood Institute
National Institute of Allergy and Infectious Diseases
 
Asthma and Allergy Resource Sheet Asthma and Allergy Resource Sheet
 
Aspergers Syndrome
 
Asperger’s Association of New England
Asperger's Disorder Homepage
Aperger's Syndrome
Asperger Syndrome Education Network
Aspies for Freedom
Families of Adults Affected by Asperger's Syndrome

Online Asperger Syndrome Information and Support
The Asperger Connection
Wrong Planet
 
Autism Resource Sheet
Autism Resource Sheet
 
 Autism 
 
Association for Science in Autism Treatment 
Autism Acceptance Project
Autism and PDD Support Network 
Autism Center of the South Shore
Autism Consortium of Massachusetts
Autism Hub
Autism Research Institute/Defeat Autism Now
Autistic Society
Autism Society of America
Autism Society of America Massachusetts Chapter
Autism Speaks/Cure Autism Now
Community Autism Resources
Exploring Autism
Healing Thresholds
National Autism Association
National Institute of Child Health and Human Development
National Institute of Neurological Disorders and Stroke
Organization for Autism Research
Positively Autism
Talk About Curing Autism
Treating Autism
Untangle Autism

 
 
Autism Resource Sheet
Autism Resource Sheet
 
Blind/Visually Impaired
         
American Council of the Blind
American Foundation for the Blind
Bay State Council of the Blind
Family Connect
Insight for the Blind
Low Vision Gateway
Massachusetts Commission for the Blind
Massachusetts Vision Resource Library
National Association for Parents of Children with Visual Impairments
National Eye Institute

National Federation of the Blind
National Federation of the Blind Massachusetts
National Organization of Parents of Blind Children
Parents Active for Vision Education
Providing Access to the Visual Environment 
Resources for Parents and Teachers of Blind Kids
 
Blind/Visually-Impaired Resource Sheet
Blind/Visually-Impaired (Sensory Impairment) Resource Sheet
 
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Cancer

American Cancer Society
Cancer Care
Candlelighters Childhood Cancer Foundation
National Cancer Institute
National Childhood Cancer Foundation
 
Cerebral Palsy
 
American Academy for Cerebral Palsy and Developmental Medicine
Cerebral Palsy of Massachusetts
Children's Hemiplegia and Stroke Association
CPP Parent Resource Center
Hemi Help
Hemi Kids
Kid Power

United Cerebral Palsy
 
Cerebral Palsy Resource Sheet
Cerebral Palsy Resource Sheet
 

Chromosomal

Angelman Syndrome Foundation
Charge Syndrome Foundation
Chromosome 18 Registry
Chromosome Deletion Outreach

dup 7q11.23 Syndrome Website
Five P Minus Society
Genetic Alliance
Genetic and Rare Conditions
Isodicentric 15 Exchange Advocacy Support
KS & A
Noonan Syndrome Support Group
Parents and Researchers Interested in Smith Magenis Syndrome
Support Organization for Trisomy
Trisomy 18 Foundations
Turner Syndrome Society of the United States
22q13 Deletion Foundation
Unique Rare Chromosomal Disorders
VHL Family Alliance
Williams Syndrome Association
   
Deaf/Hard-of-Hearing
   
Alexander Graham Bell Association for the Deaf
Alexander Graham Bell Association for the Deaf Massachusetts Chapter
American Society for Deaf Children
Deaf Inc.
Beginnings
Hands and Voices
Hearing Exchange

Hearing Loss Web
Help Kids Hear
Listen Up Web
Massachusetts Commission for the Deaf and Hard of Hearing
Massachusetts Relay
Massachusetts State Association of the Deaf
National Association for the Deaf
National Institute on Deafness and Other Communication Disorders

Raising Deaf Kids
Say What Club
The Deaf Resource Library
   
Deaf/Hard-of-Hearing (Sensory Impairment) Resource Sheet
Deaf/Hard-of-Hearing (Sensory Impairment) Resource Sheet
 
Deaf-Blind
 
American Association of the Deaf Blind
A to Z Deaf-Blindness
Deaf-Blind Children Home Page
Deaf-Blind Community Access Network

DB-Link
Deaf-Blind Online
National Consortium on Deaf-Blindness
National Coalition on Deafblindness
National Family Association for Deaf-Blind
National Federation of the Blind Deaf Blind
New England Center Deaf-Blind Project
Sense
   
Deaf-Blind (Sensory Impairment) Resource Sheet
Deaf-Blind (Sensory Impairment) Resource Sheet
 
Developmental Delay
 
Developmental Delay Resources
Division on Developmental Disabilities

First Signs
National Institute of Child Health and Human Development
National Institute on Developmental Delays

 
Intellectual Impairment and Developmental Delay Resource Sheet
Intellectual Impairment and Developmental Delay Resource Sheet 
Diabetes
 
American Diabetes Association
Diabetes Insipidus Foundation
Juvenile Diabetes Research Foundation
National Diabetes Education Program
National Institute of Diabetes and Digestive and Kidney Diseases
Nephrogenic Diabetes Insipidus Foundation
 
Down Syndrome
 
Down Syndrome: Health Issues
Down’s Syndrome Association
International Mosaic Down Syndrome Association 
Massachusetts Down Syndrome Congress
Mosaic Down Syndrome on the Web
National Association for Down Syndrome
National Down Syndrome Congress
National Down Syndrome Society
Uno Mas: Down Syndrome Online
Upside
 
       
Down Syndrome Resource Sheet Down Syndrome Resource Sheet

 
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Emotional Impairment
 
Anxiety Disorders Association of America
Attachment Disorder Website

Child and Adolescent Bipolar Foundation
Conduct Disorders
Depressed Teens
Depression and Bipolar Support Alliance
Eating Disorder Referral and Information Center
Families for Depression Awareness

Federation of Families for Children's Mental Health
Juvenile Bipolar Research Foundation
Massachusetts Department of Mental Health
Manic-Depressive and Depressive Association of Boston
Mental Health America
NAMI of Massachusetts

National Alliance for the Mentally Ill
National Association for the Dually Diagnosed
National Institute of Mental Health
National Mental Health Information Center
North American Society for Childhood Onset Schizophrenia
Obsessive-Compulsive Foundation
S.T.E.P. Up 4 Kids
The National Child Traumatic Stress Network
Youth Suicide Prevention Website

   
Emotional Impairment Resource Sheet Emotional Impairment Resource Sheet

 
Epilepsy
 
American Epilepsy Society
Charlie Foundation
Citizens United for Research in Epilepsy

Epilepsy.com
Epilepsy Foundation of America
Epilepsy Foundation of Massachusetts and Rhode Island
International League Against Epilepsy
National Institute of Neurological Disorders and Stroke
Parents Against Childhood Epilepsy
 
Fetal Alcohol Syndrome
 
FAS
Family Resource Institute
FAS
World
Fetal Alcohol Syndrome Community Resource Center
Fetal Alcohol Syndrome Consultation, Education and Training Services

Fetal Alcohol Disorders Society
National Organization on Fetal Alcohol Syndrome
 
Heart
 
American Heart Association
Children's Cardiomyopathy Foundation
Children's Heart Foundation
Congenital Heart Disease Information and Resources
Little Hearts
National Heart, Lung, and Blood Institute
 
Kidney
 
American Association of Kidney Patients
RENALNET Kidney Information Clearinghouse
National Kidney Foundation
National Institute of Diabetes and Digestive and Kidney Diseases
 
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Metabolic
 
Children Living with Inherited Metabolic Diseases
Hermansky-Pudlak Syndrome Network
International Advocates For Glycoprotein Storage Diseases
National Gaucher Foundation
National PKU News
New England Connection for PKU and Allied Disorders
   
Muscular Dystrophy
 
Muscular Dystrophy Association
Parent Project Muscular Dystrophy
 
Neurological
 
Batten Disease and Research Association
Huntington's Disease Society of America
National Ataxia Foundation
NBIA Disorders Association
National Institute of Neurological Disorders and Stroke
National Tay-Sachs & Allied Diseases Association
 
Prader-Willi
 
Foundation for Prader-Willi Research
International Prader-Willi Syndrome Organisation
Prader-Willi Association of New England
Prader-Willi Association of the USA
 
Rett Syndrome
 
International Rett Syndrome Association
Rett Angels
Rett Syndrome Research Foundation
Rett Syndrome Association of Massachusetts
 
Spina Bifida and Hydrocephalus 
 
Association for Spina Bifida and Hydrocephalus
Children and Adults with Spina Bifida and Hydrocephalus
Hydrocephalus Association 
Hydrocephalus Foundation
International Federation for Hydrocephalus and Spina Bifida

Massachusetts Spina Bifida Association
Spina Bifida Association of America 
 
Tourette's Syndrome
 
Massachusetts Chapter of the Tourette Syndrome Association
National Tourette Syndrome Association
Tourette-Syndrome.com
Tourette Syndrome Plus
 
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